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Neurofibromatosis (NF) Clinical Program

For appointments call 314.454.KIDS or 800.678.KIDS
E-mail Us

The NF Clinical Program offers comprehensive clinical and laboratory services for children.

  • Diagnostic Evaluation
  • Routine Follow-up Examinations
  • Multidisciplinary Coordinated Care

Coordinated Care in the NF Clinical Program includes:

  • Careful review of clinical and family history
  • Detailed physical and neurological examinations
  • Ophthalmology examination
  • Genetic counseling
  • Imaging studies (when indicated)
  • Appropriate consultations with our comprehensive team of medical and surgical specialists
  • Genetic testing (when indicated)

The team

The Neurofibromatosis Comprehensive Care Team provides detailed patient assessments and works with referring physicians, allied health professionals and agencies to deliver state-of-the-art medical services both locally and nationally.

  • Pediatric Neurology
  • Audiology
  • Cardiology
  • Dentistry/Pedodontistry
  • Dermatology
  • Endocrinology
  • Genetics
  • Neuropathology
  • Neuroradiology
  • Neurosurgery
  • Oncology
  • Ophthalmology
  • Orthopedic Surgery
  • Otolaryngology
  • Pain Management
  • Plastic and Reconstructive Surgery
  • Psychology
  • Radiation Oncology
  • Radiology
  • Social Work
  • Surgical Oncology

National referral center

St. Louis Children's Hospital is a national referral center for individuals with neurofibromatosis. The NF Program at St. Louis Children's Hospital is also an active participating center in all available clinical therapeutic trials and natural history studies for adults and children with NF.

Educational materials are available on our Web site, at  www.nfcenter.org.

St. Louis Children's Hospital is affiliated with Washington University School of Medicine.

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St. Louis Children's Hospital • One Children's Place • St. Louis, MO • 63110 • 314.454.6000