St. Louis Children’s Hospital

Missouri Support Groups

• Down Syndrome Association of Greater St. Louis
  Contact: 314.961.2504
  
• Franklin County
  Contact: Cindy Bossaller – 636.390.2285
  
• St. Charles County
  Contact: Brad Verdigets – 636.259.8372
  
• Good Shepherd School (Creve Coeur, MO)
  Contact: Becky Fant – 314.469.0606
  
• St. Louis City/Ballwin
  Contact: Brandy Martine or Meghan Stewart – 314.963.7744
  
• Kirkwood/Webster
  Contact: Julie Williams – 314.965.1022
• North County (St. Louis Christian College)
  Contact: Anita Minor – 314.495.5570 or 314.831.8602
  
• South County Play Group
  Contact: Amy DeGuire – 636.305.1997

Illinois Support Groups

• Southern Illinois Down Syndrome Family Support Group
  Contact: Marcie Simon (lives in Goreville, IL - 25 minutes from Carbondale) – 618.995.1888
  
• Parent’s Networking for Children with Down Syndrome (Belleville)
  Contact: Kathleen Cullen – 618.234.6876 or Ann Lee – 618.239.6351
  
• Riverbend Down Syndrome Parent Support Group (Edwardsville)
  Contact: Victor Bishop – 314.754.7495. Marc Mitchell, President
  
• Lincoln Land Down Syndrome Organization (Springfield)
  Contact: Julie Sattler – 217.546.2215
  
• Bringing Up Down Syndrome (BUDS) (Arenzville, IL)
  Contact: Jill Briggs – 217.997.5879
  
• Heart of Illinois Down Syndrome Association, Inc (Morton)
  Contact: Mari Tucker – 309.694.2984, Teri Ehrenhardt – 309.467.6113, Jamie Van Buskirk – 309.691.4753
  
• Down Syndrome Support Group (Quincy)
  Contact: Lisa Neisen – 217.223.8400, ext 4190
  
• Kids of Illinois with Down Syndrome Support (Decatur)
  Contact: Kate Schloz – 217.562.5737, Debra Widenhofer – 217.428.2707
  
• Down Syndrome Network (Urbana)
  Contact: Elaina Osterbur – 217.893.8183 or 888.893.8183, Paula Schmitz – 217.365.9571
  
• Central Illinois Down Syndrome Organization (Normal)
  Contact: Bill and Diane Crutcher 309.452.3264, Kevin and Brenda Harms 309.378.2388, Rick and Jennifer Bauersfeld 309.874.2038, Jim and Deb Presley 309.829.9042
  
• Livingston Area Down Syndrome Society (LADSS)
  Contact: David Melvin – 815.689.2202
  
• Chicago – NADS (National Association for Down Syndrome)
  Contact: 630.325.9112 or 630.325.8842
  
• Southern Illinois Parent to Parent Down Syndrome Support Group
  Contact: Julie Anderson – 618.922.5846
  
• Troy, Illinois Community Group
  Contact: Tamara Rampold – 618.667.8771