For appointments call 314.454.KIDS or 800.678.KIDS
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About Tuberous Sclerosis Complex (TSC)
The Tuberous Sclerosis Clinic at Washington University is one of about 25 TSC clinics in the U.S. dedicated specifically to the care of individuals with TSC. The mission of the TSC Clinic is to provide multi-disciplinary comprehensive care of children with TSC and to promote research, education, and awareness about TSC.
The TSC Clinic is based in the Neurology Department at Washington University and St. Louis Children's Hospital, focusing on neurological symptoms, such as seizures, developmental problems, and autism.
In addition, to address the variety of other symptoms and organs involved in TSC, the TSC Clinic incorporates a multidisciplinary approach collaborating with other Washington University specialty divisions, including Cardiology, Dermatology, Genetics, Nephrology, Neuropsychology, Neurosurgery, Ophthalmology, and Psychiatry. The TSC Clinic also participates in basic and clinical research in TSC and, in conjunction with the Tuberous Sclerosis Alliance, promotes education and awareness about TSC.
- Initial diagnostic evaluation: comprehensive diagnostic evaluation for TSC, including history, physical exam, laboratory testing, and radiographic studies
- Follow-up care: coordinated care for ongoing medical issues, involving multiple medical specialties
- Inpatient care at Saint Louis Children's Hospital: for urgent/emergent medical issues
- Scheduled radiographic screening/monitoring for TSC-related tumors, according to recommended guidelines
- Genetic testing and genetic counseling
- EEG/Video-EEG monitoring for seizure/epilepsy evaluation
- Treatment of intractable epilepsy and infantile spasms
- Neuropsychological/behavioral testing
- Educational and social support related to TSC, in conjunction with the TS Alliance
TS Alliance---800.225.6872 or visit http://www.tsalliance.org/