In order to provide the best resources for our families with NF, we have developed several important resources. These include:
- Personalized patient binders
- A booklet written specifically for families newly diagnosed with NF
- A booklet written specifically for teenagers with NF
- Information sheets on specific problems seen in children and adults with NF
- A continuously updated website with online resources about research breakthroughs
- Chart for NF teens that explains who to tell and why.
Educational materials are available on our website,
http://nfcenter.wustl.edu.