We are affiliated with the following national and international organizations related to transplantation - to continue to improve upon transplant outcomes for children with malignant and non-malignant disorders. We work cooperatively with them to design and participate in trials of treatment, supportive care, etc. This often opens up opportunities to use treatment and medications that are not easily available for our patients as we work to improve the transplant field.
American Society for Blood and Marrow Transplantation
The American Society for Blood and Marrow Transplantation (ASBMT) is a national professional association that promotes advancement of the field of blood and bone marrow transplantation. From its beginning, ASBMT activities have been in seven broad areas, representing the interests of transplanters in interactions with government, private agencies and industry.
Blood and Marrow Transplant Clinical Trials Network
The Blood and Marrow Transplant (BMT) Clinical Trials Network (CTN) was established in October 2001 to conduct large multi-institutional clinical trials. The trials will address important issues in hematopoietic stem cell transplantation (HSCT), thereby furthering understanding of the best possible treatment approaches. Participating CTN investigators collaborate through an organization designed to maintain continuity of operations, to facilitate effective communication and cooperation among participating transplant centers and with collaborators at the National Institutes of Health, and to offer trials participation to patients in all regions of the U.S.
Center for International Blood and Marrow Transplant Research
The CIBMTR designs, conducts and support clinical studies that involve large numbers of patients from multiple transplant centers - the types of studies that are needed to answer critical questions in the field of blood and marrow transplantation. The Center is committed to increasing application and access to cellular transplant therapy, as well as improving outcomes. Their ultimate goal is to help more transplant patients live longer, healthier lives.
Children's Oncology Group
The Children's Oncology Group (COG) is a cooperative group of more than 230 institutions that allows physicians and researchers to track patients' progress through standardized treatment protocols, then share the data among themselves. Because the data from many patients are combined, clinical trials obtain results more rapidly and new treatments are developed hundreds of times faster. Since childhood cancer is so rare, this is particularly important. By treating children in clinical trials, COG members have increased the cancer cure rate for children from less than 10 percent in the 1950s to nearly 80 percent at present.
National Donor Marrow Program
The NMDP manages the largest and most diverse registry to connect patients with unrelated donors with more than 6 million marrow donors and 60,000 cord blood units. They help patients access treatment and offer financial support and educational resources. Their research programs have advanced the science of bone marrow and cord blood transplant, from better matching the right donor to the right patient to improving post-transplant treatment.
Pediatric Blood and Marrow Transplant Consortium
The PBMTC is the leading organization focused on bone marrow transplant in the pediatric population, with membership from over 70 bone marrow transplant centers in the USA, Canada, and Australia. The primary focus of the PBMTC is to enhance the safety, availability, and efficacy of pediatric bone marrow transplant.
Primary Immune Deficiency Treatment Consortium
The Primary Immune Deficiency (PID) Treatment Consortium (PIDTC) consists of 42 centers in North America whose shared goal is to improve the outcome of patients with rare, life threatening, inherited disorders of the immune system. Basic scientists, immunologists, and transplant physicians from the participating centers have contributed much of the current knowledge of the cause and treatments of PID. The immediate focus of the consortium is to concentrate on three severe immune disorders which can be cured by hematopoietic stem cell transplantation, enzyme replacement, and/or or gene therapy by bringing together physician/scientists who evaluate and care for the majority of children with PID in North America.
Sickle Transplant Alliance for Research
The Sickle Transplant Alliance for Research (STAR) is a non-profit organization created by a group of pediatric hematology and stem cell transplant doctors. STAR seeks to enhance the lives of children suffering from sickle cell disease through blood and marrow transplantation. We conduct research to create better transplant approaches- ones that safely achieve cure for the greatest number.