We are affiliated with the following national and international organizations related to transplantation - to continue to improve upon transplant outcomes for children with malignant and non-malignant disorders. We work cooperatively with them to design and participate in trials of treatment, supportive care, etc. This often opens up opportunities to use treatment and medications that are not easily available for our patients as we work to improve the transplant field.
American Society for Blood and Marrow Transplantation
The American Society for Blood and Marrow Transplantation (ASBMT) is a national professional association that promotes advancement of the field of blood and bone marrow transplantation. From its beginning, ASBMT activities have been in seven broad areas, representing the interests of transplanters in interactions with government, private agencies and industry.
Blood and Marrow Transplant Clinical Trials Network
The Blood and Marrow Transplant (BMT) Clinical Trials Network (CTN) was established in October 2001 to conduct large multi-institutional clinical trials. The trials will address important issues in hematopoietic stem cell transplantation (HSCT), thereby furthering understanding of the best possible treatment approaches. Participating CTN investigators collaborate through an organization designed to maintain continuity of operations, to facilitate effective communication and cooperation among participating transplant centers and with collaborators at the National Institutes of Health, and to offer trials participation to patients in all regions of the U.S.
Center for International Blood and Marrow Transplant Research
The CIBMTR designs, conducts and support clinical studies that involve large numbers of patients from multiple transplant centers - the types of studies that are needed to answer critical questions in the field of blood and marrow transplantation. The Center is committed to increasing application and access to cellular transplant therapy, as well as improving outcomes. Their ultimate goal is to help more transplant patients live longer, healthier lives.
Children's Oncology Group
The Children's Oncology Group (COG) is a cooperative group of more than 230 institutions that allows physicians and researchers to track patients' progress through standardized treatment protocols, then share the data among themselves. Because the data from many patients are combined, clinical trials obtain results more rapidly and new treatments are developed hundreds of times faster. Since childhood cancer is so rare, this is particularly important. By treating children in clinical trials, COG members have increased the cancer cure rate for children from less than 10 percent in the 1950s to nearly 80 percent at present.
Foundation for the Accreditation of Cellular Therapy
FACT is a non-profit organization that promotes high-quality patient care and laboratory performance through voluntary inspection and accreditation in the field of cellular therapy.
National Donor Marrow Program
The NMDP manages the largest and most diverse registry to connect patients with unrelated donors with more than 6 million marrow donors and 60,000 cord blood units. They help patients access treatment and offer financial support and educational resources. Their research programs have advanced the science of bone marrow and cord blood transplant, from better matching the right donor to the right patient to improving post-transplant treatment.
Pediatric Blood and Marrow Transplant Consortium
The PBMTC is the leading organization focused on bone marrow transplant in the pediatric population, with membership from over 70 bone marrow transplant centers in the USA, Canada, and Australia. The primary focus of the PBMTC is to enhance the safety, availability, and efficacy of pediatric bone marrow transplant.