Meet Our Patients
At 8 months old, Correy Nehring was diagnosed at St. Louis Children’s Hospital with complex congenital heart disease consisting of a hypoplastic right ventricle with tricuspid atresia.
Only four months into pregnancy, Mary Vicente discovered it would take all of her family’s faith and strength to fight for Dave’s life. Dave was diagnosed with hypoplastic left heart syndrome and congenital diaphragmatic hernia when he was still in my womb.
When four-month-old Haevyn Stoddard's heart began to fail, doctors put her on a heart-lung machine. When that wasn't enough to sustain her, a new transport service offered at St. Louis Children's Hospital served as her lifeline.
Eight-year-old Aiden was born without a palate, only one eye, one nostril and one lip. He developed lung problems when he was three months old. After extensive genetic testing at several major medical centers, the only thing doctors know about Aiden’s condition is that they really don’t know how to define it.
Amanda and Armando Morales were ecstatic when they discovered they were expecting a baby in 2006. Yet the ultrasound they had when Amanda was 18 weeks pregnant squelched their joy and replaced it with worry.
McKenzi Carmack's face has magical powers. When she widens her saucer-blue eyes to a full twinkle, and adds the toothy grin of an aspiring two-year-old, the forces mysteriously combine to draw people near her. They can't help it. Gazing into her eyes is enough to melt your heart. But gazing into her heart -- that was what really hurt.
Seven-year-old Phoenix Weaver is breathing easier these days. A car accident two years ago in her home town of Nixa, Missouri left her paralyzed from the neck down. She uses a wheelchair. Until a few weeks ago, she needed a ventilator 24-hours a day to help her breathe.
When parents talk about their child’s transplant, they’ll use words like “miracle,” “answered prayer,” or “life changing.” But when it comes to talking about the organ donor and his or her family—words are hard to find. That’s because they know their child’s life was saved at the same time another family faced a heartbreaking loss.
At less than 4 months of age, Evan Wells was the first patient at St. Louis Children’s Hospital to receive a heart transplant from a donor with a different blood type. It’s called an ABO-incompatible heart transplant. Evan has type O blood and received a heart from a donor with type A blood. This rare procedure took place on August 31, and Evan is currently listed in critical but stable and improving condition in the pediatric intensive care unit (PICU).
Abigail Young spent the first eight months of her life in the hospital with heart problems. Now 2, Abigail needed so much medical help that her family moved from West Virginia to St. Louis so they could all be together.
Four-year-old Kallie Finn and her dad have a lot in common. They both have dark hair; they like playing Candyland; and they’ve both had a heart transplant at St. Louis Children’s Hospital.
If you ask Marik Lingo about her heroes, she’ll name three. The first is her little sister Tessa, the second, her oncologist and family friend Dr. Gale, and the third is St. Louis Children’s Hospital and the cardiothoracic surgeon who performed her heart transplant.
When you look at 14-year-old Jamie Chilese, it’s hard to believe that less than two years ago, she was so sick. Today, this healthy 8th grade girl loves to spend every spare minute outside; she swims, she hunts and goes fishing whenever she can.
When Roberta Miller’s 7-year-old daughter, Jolene Green, required surgery to remove a tumor compressing her airway, she knew St. Louis Children’s Hospital was where her daughter needed to be.
Katelyn has a defect called complete AV canal. Instead of four separate chambers, she had a hole in her heart where all the blood - oxygenated and non-oxygenated – ran together.
Michelle’s doctors at the Fetal Care Center wanted her to carry Logan to full term, but also wanted to make sure she delivered where experts were on hand to manage his illness, double outlet right ventricle, immediately.
Doctors discovered that Marcy had severe leakage in her left atrioventricular valve and her heart function was deteriorating. Further evaluation revealed problems with the electrical system of her heart.
When two-year-old Michael Habbe checked into St. Louis Children’s Hospital, his family was expecting the fight of their lives. What they got, they say, was a miracle.
Noah’s condition was stable while in utero. It wasn’t until after he was born—when his circulation transitioned to his own heart and lungs—that his health would be in jeopardy.
Noah Voiles was just 4 months old when he contracted meningitis and required immediate medical attention. It was in the Pediatric Intensive Care Unit (PICU) that Noah and his family met the first of many doctors and nurses who would become a part of their team, and in turn, their family.
When Zac Egleston was 16 years old, he did something very few young people typically do. He listened to his body and sensed something was wrong.
Because of the timing of his hospitalization, Quinton, still recovering from a heart transplant, would miss the annual Polar Express party at his school. As a substitute, the Child Life team decided to throw him his own party.
Thomas and Quinton share a very special bond at St. Louis Children's Hospital. Both boys used a Berlin Heart as they awaited a heart transplant.
Avory needed a treatment of last resort, extracorporeal membrane oxygenation (ECMO), to save his live because of his lung issues.
The Bartons kept a close eye on their 11-year-old son, thinking he might be fighting the flu or something else because of a rising fever. Even their dog, Peyton, seemed to sense Tysen’s distress when she jumped on his bed and seemed to be telling everyone that something was wrong with her buddy.