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Ehlers-Danlos Syndrome

What is Ehlers-Danlos syndrome (EDS)?

Ehlers-Danlos syndrome refers to a group of disorders that weaken connective tissues in the body. Connective tissues are proteins that support skin, bones, blood vessels, and other organs. Family history is a risk factor in some cases.

What are symptoms of EDS?

Symptoms include:

  • Chronic pain is a serious complication of Ehlers-Danlos Syndrome and can be both physically and psychologically disabling
  • Double-jointedness
  • Easily damaged, bruised, and stretchy skin
  • Easy scarring and poor wound healing
  • Flat feet
  • Increased joint mobility, joints popping, early arthritis
  • Joint pain or dislocation
  • Very soft and velvety skin
  • Vision problems

Is there a cure?

While there is no specific cure for Ehlers-Danlos syndrome, a normal lifespan is expected for most who have the condition. A rare vascular type of EDS can result in rupture of a major organ or blood vessel, increasing the risk of sudden death.

How is it treated?

Treatment involves managing symptoms, often with medicines and physical therapy. It also includes learning how to protect your joints and prevent injuries.