The treatments we provide help many children successfully recover from brain tumors. But many children experience lasting mental, physical and emotional symptoms long after finishing treatment.
Siteman Kids at St. Louis Children’s Hospital offers ongoing screening and assessment through after care and the Late Effects Program. We connect patients with the specialty care and community resources they need.
After Brain Tumor Surgery
Recovering from brain surgery can be a long process for children. Patients may have problems with learning, vision, hearing, motor skills or other issues.
We continue to care for and support pediatric brain tumor patients well after they complete standard treatment.
We follow patients for as long as they need us — often for 10 years or more. We consider all aspects of a child’s recovery.
Our services include:
- Regular medical evaluations and brain imaging
- Cognitive and learning assessments
- Evaluations by a psychologist experienced in the stresses of cancer survivorship
- Pastoral care support
Brain tumor rehabilitation
Brain tumor treatment can impact a child’s developmental progress and quality of life. Rehab can help and is an important part of after care services for many children.
Our brain tumor rehab services include:
- Speech therapy
- Occupational therapy
- Physical therapy
Late effects program
We follow patients as long as they need brain imaging, often two or more years after completing treatment. Once imaging is no longer needed, patients can transition to monitoring at our Late Effects Clinic.
Support Services for Patients and Families
Our support services help children navigate school and life during and after treatment — and into adulthood.
Brain Tumor Education and Therapy Support Group (BEAT)
BEAT offers education and emotional support for parents and caregivers, and gives children a chance to enjoy fun activities like watching a movie or going to the zoo.
Lunch is provided. A social worker and nurse always attend with the children. For more information and a schedule, call 314.454.2546.
Help with school
We partner with parents and schools to help children make progress in school during and after treatment. While children are in the hospital, we offer in-room tutoring so they can keep up with their schoolwork. Our dedicated school liaison and child life specialists collaborate with teachers and school administrators to make sure children have the support they need at school.
Care for young adults
Young adult survivors often need care and support after they reach the age of 21. Our Lifelong Outcomes Clinic at Siteman Cancer Center cares for these patients. For more information, call 314.747.1171.