Living with a life-limiting or life-threatening condition creates unique challenges for children and their families, which often raises important questions about life and finding meaning. Pediatric palliative care offers both hope and help for children and families to live a normally as possible.
About Palliative Care
Pediatric palliative care focuses on children, prenatal to young adult, with chronic or life-limiting conditions to support and advocate for autonomy, access to information and identifying goals of care. The Pediatric Advance Care Team (PACT) cares for patients diagnosed with many life-threatening illnesses, such as neuromuscular disease, heart disease, infectious disease, pulmonary conditions, cancer, genetic or metabolic conditions or transplant. Working as a team with a child’s health care providers and specialists, the PACT provides a well-coordinated approach to physical, emotional, social and spiritual needs.
- Addresses the goal of care with a patient and family
- Enhances communication between family and medical team
- Improves quality of life by preventing and relieving suffering with pain control and symptom management
- Enhances quality of life, which may occur at the same time as cure-directed care
- Educates patients and families about choices available
- Supports families in making informed decisions
- Seeks to provide seamless transition from the hospital to home
“One of the most important aspects of palliative care is not just for when a child is near the end of life or when curative treatment ends. It can start early in the course of care, which allows for a relationship to build between The PACT and the family.” Dr. Joanie Rosenbaum, Medical Director
“The PACT sees my daughter as a person, understands our journey, is her advocate and even a voice for her. I cannot find the words to fully express my gratitude and relief to PACT for helping my Emmy, my children and me to keep walking this special life journey we are on.”
— Parent of child with DiGeorge Syndrome