The Rett Spectrum Clinic a specialty clinic designed to care for and support children with Rett Syndrome and Rett Related Disorders including CDKL5. The clinic is a collaboration between Washington University School of Medicine and St. Louis Children’s Hospital. Within a clinic visit, patients and their families will meet with several caregivers including neurology, therapy, and nutrition along with other specialists as needed.
Patients that are eligible for the clinic include:
- Clinical Diagnosis of Rett Syndrome or Atypical Rett Syndrome
- Confirmed genetic abnormality in MECP2 (including point mutations, deletions, and duplications)
- Confirmed genetic abnormality in CDKL5
- Confirmed genetic abnormality in FOXG1
- Evaluation for any of the above
Clinic Location:
4444 Forest Park Avenue, Suite 2600
St. Louis, Missouri 63108
Clinic Fax Number:
314.454.4225
Clinic Mailing Address:
Rett Spectrum Clinic
660 South Euclid Avenue
Campus Box 8111
Saint Louis, MO 63110-1093
Conditions We Treat
We offer world-class care to children thanks in part to generous gifts from hundreds of people who have joined us as Guardians of Childhood. This philanthropic support enabled us to fulfill our mission to do what's right for kids. Join us in making health care better for all children.
