The Rett Spectrum Clinic a specialty clinic designed to care for and support children with Rett Syndrome and Rett Related Disorders including CDKL5. The clinic is a collaboration between Washington University School of Medicine and St. Louis Children’s Hospital.  Within a clinic visit, patients and their families will meet with several caregivers including neurology, therapy, and nutrition along with other specialists as needed.

Patients that are eligible for the clinic include:

  • Clinical Diagnosis of Rett Syndrome or Atypical Rett Syndrome
  • Confirmed genetic abnormality in MECP2 (including point mutations, deletions, and duplications)
  • Confirmed genetic abnormality in CDKL5
  • Confirmed genetic abnormality in FOXG1
  • Evaluation for any of the above

Clinic Location:
4444 Forest Park Avenue, Suite 2600
St. Louis, Missouri 63108

Clinic Fax Number:  

Clinic Mailing Address:
Rett Spectrum Clinic
660 South Euclid Avenue
Campus Box 8111
Saint Louis, MO  63110-1093

Conditions We Treat


Rett Spectrum Clinic Answers Parents' Prayers

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