The Rett Spectrum Clinic a specialty clinic designed to care for and support children with Rett Syndrome and Rett Related Disorders including CDKL5. The clinic is a collaboration between Washington University School of Medicine and St. Louis Children’s Hospital.  Within a clinic visit, patients and their families will meet with several caregivers including neurology, therapy, and nutrition along with other specialists as needed.

Patients that are eligible for the clinic include:

  • Clinical Diagnosis of Rett Syndrome or Atypical Rett Syndrome
  • Confirmed genetic abnormality in MECP2 (including point mutations, deletions, and duplications)
  • Confirmed genetic abnormality in CDKL5
  • Confirmed genetic abnormality in FOXG1
  • Evaluation for any of the above

Clinic Location:
4444 Forest Park Avenue, Suite 2600
St. Louis, Missouri 63108

Clinic Fax Number:  
314.454.4225

Clinic Mailing Address:
Rett Spectrum Clinic
660 South Euclid Avenue
Campus Box 8111
Saint Louis, MO  63110-1093

Conditions We Treat

Stories

Rett Spectrum Clinic Answers Parents' Prayers

As the McCools learned more about Rett syndrome, they recognized that Ellie was fully alert and present. It was then that Mickie became a fierce advocate for Ellie living as full and normal a life as possible.

Why Choose Us?

St. Louis Children’s Hospital is consistently ranked among the nation’s best pediatric hospitals by U.S. News & World Report, the most comprehensive source of quality-related information on U.S. pediatric hospitals. We follow one simple mission – to do what’s right for kids. That mission comes to life through medical discovery, innovative therapies and compassionate care.

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