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Patient Stories

Determined Parents and Dedicated Team Won’t Let Rare Syndrome Hold Back Kerrigan

Erica Waggenspack knew nothing about Rett Syndrome until her youngest daughter, Kerrigan, was diagnosed in April 2020. ...

  • Treatment

    Rett Spectrum Clinic

    The Rett Spectrum Clinic a specialty clinic designed to care for and support children with Rett Syndrome and Rett Related Disorders including MECP2 duplications, CDKL5, and FOXG1. ...

  • Departments

    Rett Spectrum Clinic Offers Care, Support for Children with Rare Disorder

    The Rett Spectrum Clinic at St. Louis Children’s Hospital and Washington University School of Medicine offers children with these rare ...

    Patient Stories

    Rett Spectrum Clinic Answers Parents' Prayers

    As the McCools learned more about Rett syndrome, they recognized that Ellie was fully alert and present. It was then ...

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