What should we bring to the hospital?
Please bring a walker, stroller or wheelchair for those patients (especially the older patients) that do not typically use assistive devices. The casts are meant for walking short distances only.
Bring all assistive devices (braces, walkers, etc.) your child uses for walking and ambulation. Your child should wear loose, comfortable clothing. T-shirts, sweatshirts, sweatpants or shorts work well.
Bring along a favorite item. Children often find it comforting to have something familiar with them at the hospital like a favorite toy, blanket, doll or stuffed animal.
Will my child be in pain?
Pain is controlled by an epidural infusion following surgery for 3 days. Children are then transitioned to prescription pain medications. By the time of discharge, most children have switched from prescription pain medications to over-the-counter acetaminophen or ibuprofen.
When can my child return to school?
Your child can return to school when you feel they are ready. We do not place restrictions on their return to school.
What activities are allowed after tendon lengthening?
A post perc protocol will be provided that addresses the specifics of care after percs including bathing and showering, swimming, activities, brace wear and PT.
Will we need follow up appointments?
We love to follow your progress but no postop visits are required. If you are local and having your casts removed here, we will see you at that time and then 3-4 months later. The International SDR/Percs group will have an appointment scheduled for them to allow 3 days of PT in new braces. If you are coming to see Dr. Park and want to see your orthopedic surgeon, we can arrange that. We are always available for questions or concerns, and you are encouraged to send videos of your child’s progress via e-mail, YouTube or Facebook.
Will my child need further lengthening in the future?
Our goal is one and done but all children are different and some may require future lengthening as they grow. During periods of growth, increasing PT and stretching is recommended.
What if I have more questions or concerns?
For more information about selective dorsal rhizotomy surgery or minimally-invasive tendon lengthening surgery at St. Louis Children’s Hospital, contact 314.454.KIDS (5437) or 800.678.KIDS (5437).
