In order to provide the best resources for our families with NF, we have developed several important resources. These include:

  • Personalized patient binders
  • A booklet written specifically for families newly diagnosed with NF
  • A booklet written specifically for teenagers with NF
  • Information sheets on specific problems seen in children and adults with NF
  • A continuously updated website with online resources about research breakthroughs
  • Chart for NF teens that explains who to tell and why.

Educational materials are available at