We are pleased to host our 5th Single Ventricle Family Forum!
Please join us for this family-centered conference covering the latest medical updates on the care of and issues affecting single ventricle patients, as well as talks on quality of life issues that we hope will provide support and encouragement in non-medical ways. Our speakers include physicians, parents, and adult Fontan patients.
Event Info
Single Ventricle Family Forum
St. Louis Children’s Hospital and Washington University Heart Center
Saturday, April 10, 2021, 8:30am-1:00pm
Event is Virtual.
Free event, but registration is required (registration below). A link will be sent to families once they register.
Agenda
Welcome
Dr. Caroline Lee and Julie Stumpf, RN
Single Ventricle Family Forum Co-Chairs
Fontan: What’s On the Horizon
Dr. Marion Ybarra
Assistant Professor, Pediatric Cardiology
Washington University School of Medicine
Director, Comprehensive Fontan Clinic
Protein Losing Enteropathy after Fontan Surgery—What is This?
Dr. Philip Barger
Associate Professor, Internal Medicine-Cardiology
Washington University School of Medicine
Director, Center for Adults with Congenital Heart Disease
Pregnancy Planning for Women with Single Ventricles
Dr. Kathryn Lindley
Associate Professor, Internal Medicine-Cardiology
Washington University School of Medicine
Director, Center for Woman’s Heart Disease
Fontan Associated Liver Disease
Dr. Janis Stoll
Associate Professor, Pediatric Gastroenterology, Hepatology and Nutrition
Washington University School of Medicine
Q/A
Dr. Marion Ybarra
Dr. Philip Barger
Dr. Kathryn Lindley
Dr. Janis Stoll
Patient’s Perspective on Pregnancy
Interview with Kelsey Beelman
Fontan Patient
Mother of two
Moving the Single Ventricle Field Forward through Advocacy and Partnership
Scott Leezer
Fontan Patient
VP of Government Relations, CURA Strategies
Hindsight is 20/20: Sharing Lessons Learned and Insights Gained
Diane Pickles
Mother of Jake, Adult Fontan
Program Director, Project Singular, Additional Ventures
Executive Leadership Team, Fontan Outcomes Network
Don’t Forget About You
Leslie Davis, MA, LCPC
Mother of Judah, Teen Fontan
Staff Therapist, Heart Center
Q/A
Kelsey Beelman
Diane Pickles
Scott Leezer
Leslie Davis
Past, Present, and Future of Single Ventricle Care at St. Louis Children's Hospital
Dr. Charles Canter
Professor, Pediatric Cardiology
Transplant Cardiologist and Director, Pediatric Cardiology Research
Lois B.Tuttle and Jeanne B. Hauck Chair in Pediatrics
Washington University School of Medicine
Heart Center Highlights
Recognition of 2019 & 2020 Heart Center High Risk Infant Interstage Graduates
Closing
