Comprehensive, specialized management of bleeding disorders: Being treated at a multi-disciplinary center — like the Bleeding Disorders Center — that is focused specifically on bleeding disorders helps ensure that your child is receiving the very latest treatment options.
Our team also coordinates with a variety of subspecialties — such as dental care, genetics, psychology, orthopedics, OB-GYN, surgery and gastroenterology — to offer comprehensive management of your child’s bleeding disorder. Our focus is to make sure your child’s specific medical, developmental and psychological needs are met.
Focus on understanding bleeding disorders: Education is an important part of living with a bleeding disorder. Our team teaches you and your child what signs to look for in the early detection of internal bleeding and what to do when you suspect a bleed or when an injury occurs.
As children grow, their understanding of their bleeding disorder will change, as will their ability to handle new responsibilities related to their condition. We work with you and your child to provide age-appropriate education and advice about growing up and growing old with a bleeding disorder.
Addressing joint damage in bleeding disorders: Joints damage is one of the most common complications of hemophilia. This damage can come from repeated bleeding into the joints or from one major bleed. Our team helps patients manage bleeds to prevent or minimize joint damage, and to learn how to respond to an emergency bleed in the joints.
Guidance in choosing between kinds of factor and infusion frequency: We help guide you in determining which factor brand will work best for your child: whether it is plasma-derived products or recombinant factor concentrates. We also help you and your child understand the pros and cons of different infusion therapy strategies (whether using primary or secondary preventive infusions or on-demand infusions).
Infusion therapy options: We offer self-infusion and parent-infusion classes so you can perform home infusion therapy. Home infusion therapy can offer you and your child more flexibility and independence. Please talk with your hematologist if you are interested in learning more about home infusion options.
Collaboration with your child’s primary care provider: Your child’s primary care doctor, nurse practitioner or pediatrician is an important part of our care team. The Bleeding Disorders Center’s team works closely with your child’s primary care providers to make sure everyone is kept informed about your child’s care and any changing needs.
At clinic visits, each patient receives an extensive evaluation by hematologists, nurses, physical therapists, and social workers, which we report back to primary care providers.
Convenient reporting for bleeding episodes: We offer state-of-the-art technology for patients and parents to report bleeding episodes.